Wakisha Stewart: Episode Link
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On this episode, we speak with with Keisha Stewart, author of the book ‘Sonata for a Damaged Heart, a Young Mother’s Journey of Survival After a Near Fatal Heart Attack.’ Keisha shares her personal experience of suffering from a spontaneous coronary artery dissection (SCAD) and having a heart attack at the age of 31, just two weeks after giving birth to her second child. She discusses the lack of awareness about heart attacks in women, especially during the postpartum period, and the biases and stereotypes that women, particularly women of color, face in the medical field. Keisha emphasizes the importance of women advocating for their own health and seeking second opinions. She also talks about her involvement in the American Heart Association’s Reclaim Your Rhythm campaign, which aims to raise awareness about heart disease in women. The interview highlights the need for women to prioritize their health and listen to their bodies.
TRANSCRIPT:
Welcome back to How Flashes and Cool Topics. Today we have on Keisha Stewart and Keisha’s book has just launched. It’s called “Sonata for a Damaged Heart, a Young Mother’s Journey of Survival After a Near Fatal Heart Attack.” And listening to your story, it really sent chills down my spine and I’m sure Bridget’s because it’s just something that you don’t hear that often about, but women need to know more about. about our heart health.
So welcome to the show, Kisha. – Thank you so much. Thank you for having me. Thank you for giving me this opportunity to spread a little bit of awareness and to speak about my book because you’re right.
So many women need to know and so many women don’t. – Yes, it’s amazing. Reading your book, you know, you were so young when this… incident happened to you.
Can you share? I know we don’t have all the time to share, but a little bit briefly, what happened to you and what SCAD is? – Yes, so SCAD stands for Spontaneous Coronary Artery Dissection.
So in layman’s terms, an artery in my heart actually tore. There’s different degrees of SCAD. Some women have a slight tear, which… which is able to heal just by medication and rest,
while others, unfortunately, can go into cardiac arrest and pass away from it, or have a heart attack from it, which is what happened to me. Usually it affects women.
I think roughly about 90 % of cases are in women. However, men can be affected as well. It usually hits women who are… are in that area of their life when they’re getting ready to have kids or going into perimenopause,
menopause, where hormones fluctuate a lot. So in my case, when I was 31, back in 2011, two weeks after I gave birth to my second child and it was a normal pregnancy,
pregnancy other than the fact that I had gestational diabetes and he was big. So two weeks out, we went to a friend’s house for a dinner party and that particular day I was feeling a little more fatigued than usual but I was taking care of a newborn and I have at the time a five year old son.
So it’s not out of the realm of possibility that I’m going to give birth to my second child. going to be tired. I went to the party along with my husband having a good time still feeling overly fatigued and then started feeling a little disoriented.
I couldn’t really see straight it was hard for me to focus on conversation and then I felt really hot pants getting clammy. I went to the bathroom splashed water on my face.
figured okay, maybe, you know, something’s going on, but not anything to be too concerned about. Then I went back and when I sat down almost immediately,
I had that sharp pain in my chest and then that tingling down the left arm, pain radiating to the back of my neck up into my jaw.
And that’s when I said, well, this song something is terribly wrong. Didn’t suspect that it was a heart attack at that time, because even with me being a nursing assistant,
I had been an athlete my whole life. I didn’t know that women had heart attacks, or susceptible to having heart attacks, and their postpartum period.
But at the time, I told my husband I couldn’t breathe. It felt like my chest was just being crushed. crushed like it was in a vice. And I said, you know, we have to leave.
He, of course, joked around and asked me if I had too much wine. I said, no, I wish, but no. And we rushed to the hospital all the while.
I was still feeling that crushing pain in the chest. I was getting nauseated and then eventually vomiting got to the hospital. my husband wheeled me in.
I told the receptionist everything that I had been feeling, first and foremost, chest pain. And she kind of looked at me, asked me, oh, well, what were you doing prior?
And I told her, oh, I was out at a dinner party for the first time since having my son. And she began to tell me that, oh, it’s anxiety or panic attack.
You’ll be fine. And because I knew myself and because I knew how my body reacted to different stressors, I knew it wasn’t anxiety.
I knew it wasn’t a panic attack. So I told her, no, I want to be seen. I’m going to stay and wait. And she kind of rolled her eyes and said, all right, you can just go into the waiting room right there and you’ll be called back.
And it’s not a panic attack. It’s not a panic attack. took about 30 minutes before I actually got called back. So when I finally went into triage, they couldn’t understand what was happening to me.
They didn’t know why my EKG was kind of inconclusive, but it’s because of the type of heart attack that I was having unbeknownst to anyone at the time. A more senior nurse for whatever whatever reason walked by and she took two seconds and said she’s having a heart attack and then instantly it clicked.
Everything that I knew about heart attacks, it really was happening to me. Everything was kind of a blur. They rushed me into the back. They tried to give me all the standard things that they give you,
morphine, oxygen, all of that. all nitro, all those things to try to alleviate the amount of pain that I was in and nothing worked. So I had to be rushed to another hospital. Eventually the cardiologist that worked on me and saved my life,
he placed a stent. And that’s when I found out that I had a scad, which caused my widow maker heart attack, which only one in four normally survive.
And… And from that moment on, it’s just, it’s been a whirlwinds, even 12 and a half years later.
And I just remember feeling so alone and isolated and thinking, why, why did this happen? Why didn’t I know that it could happen? And,
you know, why are more people not aware? [BLANK _AUDIO] There are so many questions that I have for you in your experience. And, you know, your story is one where you were just very lucky that a woman,
senior nurse walked in and said, she’s having a heart attack because there are so many people that don’t get that one person who like light bulb moment goes off. But you were a nursing assistant and I think it’s really important for women listening to this person.
podcast, understand that women don’t always have the typical feeling like you did have the chest pains, you did have the radiating feeling down your left arm. But for some women,
it could be back pain. Can you talk a little bit about how the symptoms aren’t always the same for men and women? Right. So men have, you know, those typical clutching of the chest because they have that sharp pain and they have…
the tingling that’s those main things happen to men but with women like you said it’s very different it could be a headache it could be a backache it could be you know just tension and pain in your shoulders in your jaw it doesn’t necessarily have to include that chest pain and I’m not saying every single ache and pain is a heart attack what I want people to understand is when you put things together,
you need to get yourself checked because you’d rather be safe than sorry. Also, women could experience indigestion, heartburn. Those are other indicators that could mean something is happening.
So it’s very, very important. And I know for me, I was fortunate enough to understand. understand my body so it’s really important for women particularly to understand what their body is going through and to listen,
listen to your body because your body will give you clues as to if there’s a problem. Yes and you know another thing that you bring up in the book that has brought up so much is you went into that emergency room with with chest pain.
told you had a panic attack, told to wait 30 minutes, and I have a sister that’s a nurse that always says if you go in for any reason, tell them you’re having chest pains,
but you were sent to wait, and I know for women of color, for women, how they are treated so differently than men. Can you share, I know in your book you share some of the statistics,
but can you share how this happens? to women and particularly women of color? – Yeah, unfortunately, women are seen as being dramatic. So sometimes we’ll be say something is wrong.
Oftentimes we’re dismissed, unfortunately, because we’re not as dramatic as men are when we’re sick. But I mean,
in all seriousness, women wait. 30 % longer when they’re having some sort of heart -related issue to actually get checked. And then when they finally get to the hospital,
they’re treated, it takes 20 % longer for them to receive any kind of treatment, anything that’s a baby aspirin, even to just be seen,
anything at all. So it’s really unfortunate. And I think, think a lot of times it’s because we have this assumption that women are dramatic or women can shoulder so much.
And with Black women, Hispanic women especially, we’re seen as being loud or, you know, overly dramatic. And we’re also seen as being able to handle pain better than,
you know, a white woman, which isn’t true. I know people of all walks of life who some can handle it and some cannot, male and female. So really,
one of the reasons why I wrote the book was to kind of address this bias that people in the medical field do have. And I remember when I went back to nursing school after my heart attack,
I remember being taught these things. things. I remember my professor saying, you can’t have these. These are the stereotypes. This is wrong. And yet still within society,
within the medical arena, you still find, unfortunately, people just dismissing us. I’ve even had a psych consult called on me once a few years after,
because I went– back to the hospital with chest pain, having had a history of a heart attack. And they just thought I was crazy. And I said,
no, I’m not crazy. I know myself. Stop and listen. And until we all can understand what really is happening, and all of us get united and fight for it,
people just aren’t going to listen, unfortunately. – Also, you talk about the, I’m just gonna say PTSD, but the trauma afterwards,
because that’s very relatable. People don’t really talk about the fact that after you’ve gone through such a traumatic event, you have to jump back into life. And for you, you had two small children. What was that experience like for you?
– I remember being in the hospital recovering and an older gentleman came in and he tried to give me something for a support group.
Well, people in the support group, they already lived their life, no offense to them or anything, but they were in their senior years and I was just starting.
So there was nothing that I could relate to. to with them. I felt very alone, I felt very isolated, because no matter where I went,
even when I went to the doctor’s office, I was always the youngest person in the room. And that’s difficult because human nature, we want to connect,
we want that camaraderie, we want someone who understands what we’re going through to help us. get through it. And I didn’t have that. And I had to kind of push certain feelings down because so many people expected me to be a certain way.
Because visually, you don’t see that I have heart -related issues. People think you’re okay. And including family and friends, you know, they say, well, I don’t understand,
you look fine. Well, yeah, I know you’re fine. fine, but inside, I’m still healing. And you start to kind of remove yourself and go deeper within yourself because no one,
or you feel like no one understands. So it was very difficult to kind of, on the one hand, need people, but then on the other hand,
feel like you can’t rely on anyone or open yourself. yourself up because of judgment, because of expectations, whatever the case may be. It took a long time for me to get it back and try to balance everything.
It wasn’t easy. It’s not easy at all. And I had tremendous PTSD. I had to seek medication for it because when you’re living or at the time,
I was scared to live. My heart attack happened during one of the happiest times of my life. And so in my mind,
I just kept thinking if it can happen when I’m happy, well, it’s just going to happen again at any point in time. So I’d rather not do anything else. at all. Eventually,
my husband just kept saying, you can’t live like this. Where’s the old Keisha? And I cried because I knew that the old Keisha was gone.
I had to mourn her. And I couldn’t move forward until I recognized that. And I couldn’t move forward until I recognized that. I accepted the fact that it really happened.
This is something that’s a part of my life now and I have a new normal that I have to create for myself. I’m very fortunate to have my husband and family that were able to support me,
but it was a very long road, an extremely long road. And I just figured one day that… I am doing or it’s such a travesty for me not to live when so many people before me didn’t get the second chance that I got.
So yeah I just felt like your book too. I think that’s so important for people to read because you don’t hear a lot about this situation or the women that die or how how really scary giving birth can be.
be, especially post giving birth. And one thing I feel like a message in your book is that you really give women a voice to advocate, be an add be your own medical advocate in that situation can he I mean for you you share in your book,
you know how long it did take you through certain points and how frustrating that being up. I’m amazed when I read it, just how,
what’s something you would tell a woman that really needs to hear that you need to be an advocate even when you feel like everything is going against you? – So on my website,
actually, I have this phrase that I came up with when I did a speech. It says, be dramatic. No one will fight harder for your life than you, which is… is true.
If people want to assume that women are dramatic, let’s show them what dramatic really is, because I can really be that dramatic. And when it comes to saving your life,
that’s what you have to do. You have to take control and you have to fight, but you also have to educate yourself enough so that way you have confidence in the words.
in your voice, so that you can be heard. And don’t stop until you are heard. That is extremely important. – So in 2022, you were selected by the American Heart Association to be one of 12 spokeswomen advocating for women’s heart health in their Reclaim Your Rhythm campaign.
How did that come about? And what is the campaign like specific? Obviously, it’s hard. health, but can you tell us about the campaign as well? – Yeah, sure. So Go Red for Women is a part of the American Heart Association and their goal is basically to bring about awareness for heart disease in women,
whether it be raising money for research, advances in technology, more educational things to be put out to different people.
communities or even holding events where we’re checking blood pressures or giving people information on where to go to get your blood pressure checked or diet and exercise and all that.
So in 2022, I was selected. I had to submit a video prior to and it just so happened that that particular year everything kind of came together for me.
and I was selected. I had submitted something a year prior and I wasn’t selected then. But I think in my experience, everything happens for a reason. You just have to remember that.
And there’s a time and place for everything. During 2022, I got to know some amazing women. I got to know other patients.
other advocates. And it has been an amazing sisterhood. It’s, I never had the ability to just be me in a conversation when it comes to medical issues,
you know, because eventually you get this kind of morbid sense of humor, because of what you’re doing. And sometimes people are like, Oh, she’s joking about about that.
Whereas with my heart sisters, they get it. They understand, oh, if I say, oh, I’m traveling, I feel like I’m bringing a pharmacy with me. They understand because they know that all the medication that requires for you to live,
you have to drag along with you. So yeah, it was a great experience. I still volunteer with the American Heart Association whenever they need. need.
As a matter of fact, I’m going to be doing some things on their support network so that way I can help other women who are either pregnant or postpartum if they have any questions about anything at all that I can kind of talk them through,
give them advice. I started volunteering with the American Heart Association back in roughly 2019. I had a had knee surgery and I needed something to do.
You know, when you’re a nurse deep down, when you’d love to help people, it doesn’t stop. So I figured if I can’t work, I’ll volunteer my time. And that’s kind of what got me started and brought me to being able to be selected in 2022.
– You know, with the American Heart Association, it seems like after reading your book, book that kind of was such a healing process for you and I mean when I was reading your book.
I’ve thought How did she ever do this? How did everything that happened to you? I thought oh my goodness You are very you’re a very driven person.
I mean that was so can you share how sometimes you are so driven how that I Don’t know the way they that you had to work through being so driven to get you to this point where you are now.
Yeah so I really think it’s my background. My parents are immigrants. I’m first -generation born in the States. They’ve always taught myself and my brother that education is key to get you anywhere.
That’s your power. I’m the oldest as well so I have that you know alpha female. mentality or personality. And ever since I was younger,
I always wanted to help people. And I always knew that I didn’t want to be stuck in just one place. I always wanted to grow. And my parents always supported growth in us.
So I really believe that that’s where some of that comes from. And just… I believe that my drive, it increased when I had children,
when you start thinking about your future. And eventually in 2015, I did have a daughter, which was a very trying, hard time for me.
But especially having my daughter, that pushed me even further. Because I kept thinking, well, I don’t want her to go through what I went through.
So I don’t want any other woman to experience or have to hold their daughter dear because someone didn’t listen to their daughter. I don’t want,
with cardiovascular disease being the number one killer of new moms, I don’t want another woman or I don’t want a family to have to bury, you know.
And just based upon what I’ve been through, I felt that I survived for a reason. I cannot allow things to just keep going the way that they are and not do something about it.
My husband says that I’m overly altruistic. And be that as it may, I don’t know if it’s because I’m a Virgo or what, but I have something to do with it.
mean my my heart I have a very caring heart my soul deep within my soul is this desire and this fire to really help others and I’m not happy unless I do.
Well that is very altruistic so your husband is right. I would ask you because I think it’s important for the listeners to know there was no family family history, right, in your family of heart problems.
What is the likelihood of someone who has had this SCAD experience having it again and what do you need to do to avoid that? What medications,
like how much is involved in keeping yourself healthy, especially during a third pregnancy? So with SCAD, they’re really important.
is no way to avoid it. If it’s meant to happen, it’s going to happen. But I usually tell people, you know, why not make sure that your foundation is solid,
meaning diet and exercise? Why not make sure that from the beginning we’re teaching our kids how to eat healthy? And I’m not saying that you have to eat salad.
every single day, I certainly don’t do that, but make healthy choice options. In my house, when I was growing up, we didn’t have a lot of sugar or soda or chips or anything like that.
So I truly believe because my parents helped me build a solid foundation that helped me recover. I don’t know why,
I don’t know why, didn’t pass away like so many other women have before me. I think that because of my athleticism and because of just the way that I was,
I was healthy. Like you said, I had no family history. I think those factors truly did help in my survival. Women in general also because men mental health affects physical health,
we have to pay attention. We have to learn that self -care is not selfish, that it’s actually self -less, because when you take care of yourself, you are able to take care of others,
but you have to make yourself a priority. We have to just pay attention. There’s no — for regular heart disease, you know, you need to — avoid smoking,
you know, drinking, you know, fats, high salt, things like that. You have to know what your family history is in order for you to address if there is a risk.
With those who have had scab, unfortunately, many women are healthy. And it just suddenly happens, whether it’s because of hormones or or other connective tissue disorders,
you know, you just don’t know if you’re going to be the one, so you have to ensure that you’re doing what you need to to protect yourself, to protect your body.
I think, let’s see, I’m trying to think what the percentage is, but for a person who has had a scad, I think I think it’s roughly 10 % that they are likely to have another one.
But just like with SCAD, you don’t know if you’re going to be part of that 10%. So it’s very, very important that you, you know, go to the doctor,
get those things checked out. If there’s something wrong, fix it. So that way, you know what your baseline is where you should be. be. When things happen,
we have to be open and honest about it. We can’t go to the doctor and think, “Oh, well, something happened to me two weeks ago, but I’m not gonna bring it up because,” you know, “that pain went away.” No,
talk about it, because that could be an indication of something else. And our doctors can only treat us for what we tell them is wrong. So you have to be open and honest about it. So you have to be open and honest.
And on the flip side, you have to understand that medicine is a practice. So doctors practice medicine. Not one doctor knows 100 % of anything.
So it’s okay to ask questions. It’s okay to get a second opinion. It’s okay to fire your doctor and go to a new one. Do what you have to do.
do in order to make sure that you are well taken care of. And if you have that super woman syndrome, then that’s what you need to do. If you’re not here to take care of things,
who’s going to be? – You know, you said just what you just said is something that we talk about so much is getting second opinions. It’s okay to break up and fire your doctor if you’re not happy.
happy and you have evidence of that in your book and just the whole insurance thing, just going through the doctor that you had in the hospital and then when you had to go to another doctor that really wasn’t jiving with you.
And then you found a doctor who said, when you said you wanted to go to the Mayo Clinic and they were like, I think that’s a great idea. And I thought, “There you go,
you have this doctor.” Yeah, that’s listening to you and helping you. And that’s another thing, a lot of women, I think patients in particular, but I think women as well.
I mean, I feel that they’re so dismissed in that it was, yeah. – And I think when I went back to school and became a nurse, it’s because of what happened to me at Mike’s.
experience. It’s because of that nurse that saved my life. It’s because I saw that there was a need for advocacy and I wanted to be that person for my patients. And I tell them,
I say, if you’re experiencing something, if you’re not happy, it’s okay to say something to the doctor. It’s okay to ask a question.
I’ll do whatever I need to do and it’s okay to say something to the doctor. you, but ultimately, you are in charge of your health, so you have to make the decision. Too many times,
especially with older generations, they assume that, you know, anyone who’s in a position of authority, they know everything, so they’re not going to question. No.
That is gone. There’s been too many cases of people being mistreated. misdiagnosed, women being dismissed and it truly affects the rest of their life,
if not also, you know, may affect them living or dying. So we have to ensure that we are using our voice,
that we understand that they are providing a service, just like when you go to a restaurant, you know. this is not a service.
You’re paying for this person, whether you wanna think about it or not, you pay into insurance, they pay these doctors. So make sure that you’re getting exactly what you deserve.
– It’s so true. And Kisha, we are so grateful that you are doing well and you’re giving back so much to the women’s health community.
So we want the listeners to make sure to check out your new book. Congratulations again on that Sonata for a damaged heart. And best of luck on the book and your health.
And thank you for coming on today, we appreciate it. – Thank you so much for having me. I really, really appreciate this opportunity. And I hope that, you know, everyone, if anything, you know,
they take charge of their health and say, “Don’t dismiss us.” – Amen to that. – Absolutely, yes. Thank you so much. – Thank you. (upbeat music)